Cerebral AdrenalLeukoDystrophy

Cerebral AdrenalLeukoDystrophy
Is a dreadful disease
So please, Lord, please,
Explain why it exists,
Why it strikes guiltless children
And why it chose our beautiful, bright boy,
Full of innocence, light and joy.
This is so hard to understand,
We cry out in despair
Because there is nowhere
To hide the fact that
No treatment can mitigate
The effects or the progress,
No treatment to reverse the process.

Disbelief. Denial. Shock.
Robbed of his future
By a genetic abuser,
His parent’s precious child,
Cursed by research failure.
How can this be?
How cruel is life’s reality.
Give them strength Lord,
It’s so incredibly unjust,
Help them face what they must.
We should be able to protect
Our little ones more than this.
As they see their boy fade away,
Help them cope day by day.

(c) wordz2Go Jan 2018

For Thomas, age 8

Psalm 18:6
“In my distress I cried to the Lord: I cried to my God for help.”

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Please Pray, Today

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He’s 8 years old:
He shouldn’t have
Abnormalities on the brain,
It’s inhumane.
Children shouldn’t suffer
Like this.
Life is unnecessarily cruel
When youthful
Exuberance is squashed
Into submission,
Sedated for scans and tests
As the beast is assessed.

Over-tired, stressed parents,
Scared byond endurance,
Watching their boy regress
As doctors guess
At the nature of the beast
Attacking his brain,
Physically and emotionally,
Spacially and socially
Changing him
Before their eyes –
He is their precious boy
Not a research toy.

Join me to pray
For a treatable cause,
For a miraculous healing
Through our believing.
Pray our all-powerful God
Guides the analysts
And for rapidness
Of medical diagnosis.
Pray a boy is returned
Back to his family
Where he should be
With every capacity
Fully intact
To live a full life,
To grow and mature
And to feel secure.

Please – pray, today.

(c) wordz2Go Jan 2018

Thomas is my nephew’s son

Matthew 21:22King James Version (KJV)
‘And all things, whatsoever ye shall ask in prayer, believing, ye shall receive.’

Life-Chances

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New Year,
New hopefulness:
More life-chances
Soaring on thermals
Waiting to be seized,
Uncertainty infused
With opportunity.

Grasp it,
With both hands
As it floats before you,
Else it slips away
Never to be seen again
Within your domain,
A lost chance.

Co-incidence or
God-incidence:
Chances are offered,
Taking them is a risk
Is it too great to take?
Is it bend or break?
Don’t let it float away.

(c) wordz2Go Jan 2018

Joshua 1:9
“Haven’t I commanded you? Strength! Courage! Don’t be timid; don’t get discouraged. God, your God, is with you every step you take.”
The Message

Loss & Gain

2017 was not entirely kind,
These images come to mind:

Swimming wearing Mam’s cross,
Hoping not to suffer it’s loss
As I run across the beach-too-hot
From towel to towel in a tango-trot
Dancing through palm-tree debris
To dive into the sea;
Losing my sister so suddenly
Pulled the rug from under me,
Just as I thought the year was done
My sister left us far too young,
Followed by my Aunty Glo
Which only added to our woe.

Having friends and family
Spending time with me,
Navigating uncharted waters
With these soul-restorers
And learning to swim
In the depths I found myself in.

Celebrating my son’s Master’s Degree
In mollecular-biology,
Filled with joy for my
Curly-headed, blue-eyed boy,
Then employment by the university,
I thank God you didn’t join the army!
Celebrating my daughter’s career move
Getting into the Teacher groove –
The perfect job for my songbird,
Tune them up and make them heard –
Let your baton twirl and spin
Teaching school-children to sing!

Celebratory decision to retire early
Before the job consumed me wholly,
Finding my chiahuahua Kit
And absolutely loving it,
Such uncensored love and loyalty
Has filled my life most joyously.

This year has been bitter-sweet,
Hoping the next will bring a treat.

(c) wordz2Go 31 Dec 2017
Jeremiah 29:11
“I know the plans I have for you, plans to prosper you and not to harm you.”

If ..

If ..
You’re missing one or two,
Or even a few,
Around the table today,
Close your eyes and pray
Their face into view
And soon you
Hear their voice,
Feel a kiss upon your cheek,
So close you could speak.
Physically absent but
Spiritually present:
Imprinted deeply
In treasured memories
Always ready to peek through the door
And love you some more –
Their love never dies,
It shines from your eyes.
So add a spare chair
Even though they’re not there,
Smile through your tears,
Recall the past years
And remember how lucky you are .

(c) wordz2Go 25 Dec 2017

Hands Through the Clouds

Life knits an ever evolving pattern
Where you can never be sure
How things turn out,
And no doubt
You’ll lose stitches along the way,
Crooked seams where cracks appeared,
Patches wet from tears,
Emotional times in difficult years,
Double stitches
Where you’ve been helped
By family or friends
Because love amends.

No matter how well you knit
There will always be holes
Where your soul never mends,
Yet heaven extends
Hands through the clouds,
Divine signs,
To warn in advance
Of a change in chance.
Strands of different colours
Intertwine seamlessly,
Knitting the rich tapestry
Of life’s majesty.

(c) wordz2Go Dec 2017
Based on a vision I had of hand reaching down from heaven
Just before my sister died suddenly

Spare Me!

Spare me the depression
Of pretend peoples’ lives
On the TV this Christmas.
Real life can bite
When you least expect it,
Who wants extra melodrama?

I hate to break the news
But these people are not real:
No-one’s really drunk,
No-one’s overdosed,
No-one’s left home
And no-one’s died.
It’s pretend. Period.

For some,
These things are real
And seemingly inescapable,
Happiness totally unattainable.
Engage emotions with the script,
Mood plummets
And before you know it
You’ll be reaching for the bottle.

Spare me the misery –
Screen some happy shows
This Christmas,
Show witness to the good
Things in life,
Raise spirits of a different kind
And remind us
Of the good in Christmas.

(c) wordz2Go Dec 17

Proverbs 13:20 ESV:
“Whoever walks with the wise becomes wise, but the companion of fools will suffer harm.”