Angel Wings

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https://www.justgiving.com/crowdfunding/thomsstory

Thomas isn’t fading,
He’s growing angel wings,
He’ll fly up high across the sky
To infinity, and beyond!
Rub between his shoulders
To feel a bony growth,
Angel wings are growing,
They’ll grow and spread
Right over his head
To guard him from the world.

Thomas isn’t dying,
He’s growing angel wings,
He’s just a child being denied
Opportunities we’ve been given.
While life is brutally cruel,
Only child-like innocence
Can grow such precious wings,
The power of flight
Is within his sight
Despite his failing vision.

Thomas will go flying,
Around the sun and moon,
He’ll see things from angel wings
But we’ll be left behind.
We will feel bereft
But Thomas will be living,
In a different time and space,
Where fears of the present
Are ceded to the heavens
Where Thomas will reside.

Thomas isn’t dying,
He’s just begun to live.

(c) wordz2Go Jan 2018

Psalm 23:4 “Yea, though I walk through the valley of the shadow of death, I will fear no evil…”

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Karate Kid

https://www.justgiving.com/crowdfunding/thomsstory

A child,
He’s just a child.
A little blue-eyed boy
Who loves lego and Star Wars,
Harry Potter and karate.
Just a normal kid:
Pride of his parents,
Wonderfully loving big brother.
Now roles reversed as younger
Sister moves things out of his way
To prevent him stumbling as
Disease affects his sight.
Soon it will take more –
An inevitable forward momentum.
Pray still for a miracle,
Believe in the impossible
From the God of possibilities.

(c) wordz2Go Jan 2018

Life Rescheduled

Please follow the link to read Thomas’s story and donate

https://www.justgiving.com/crowdfunding/thomsstory

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My nephew Jamie with his son Thomas at his 8th Birthday Party

Sit down
Pour yourself a drink
And think
About your life:
Work, career, progression,
Holidays, family, pension.
All mapped out,
Planned and lived,
Fully maximised.

Plan rescheduled –
Your son rewinds at eight,
Re-evaluate,
Your world becomes
Memory-making, indecision,
Crying-at-night, anxiety-ridden.
Life changes forever
As a child’s grip
Is loosened.

(c) wordz2Go Jan 2018

 

Thomas Meacham

https://www.justgiving.com/crowdfunding/thomsstory

Please read and share and donate if you are able to.  Thomas is my nephew’s son, just 8 years old and has been diagnosed with an incurable brain disease.  Our family is devastated.  This page has been put together by his school friends to help him and his parents.  We all want him to have an awesome time while he can.

Thank you

 

 

Cerebral AdrenalLeukoDystrophy

Cerebral AdrenalLeukoDystrophy
Is a dreadful disease
So please, Lord, please,
Explain why it exists,
Why it strikes guiltless children
And why it chose our beautiful, bright boy,
Full of innocence, light and joy.
This is so hard to understand,
We cry out in despair
Because there is nowhere
To hide the fact that
No treatment can mitigate
The effects or the progress,
No treatment to reverse the process.

Disbelief. Denial. Shock.
Robbed of his future
By a genetic abuser,
His parent’s precious child,
Cursed by research failure.
How can this be?
How cruel is life’s reality.
Give them strength Lord,
It’s so incredibly unjust,
Help them face what they must.
We should be able to protect
Our little ones more than this.
As they see their boy fade away,
Help them cope day by day.

(c) wordz2Go Jan 2018

For Thomas, age 8

Psalm 18:6
“In my distress I cried to the Lord: I cried to my God for help.”

Loss & Gain

2017 was not entirely kind,
These images come to mind:

Swimming wearing Mam’s cross,
Hoping not to suffer it’s loss
As I run across the beach-too-hot
From towel to towel in a tango-trot
Dancing through palm-tree debris
To dive into the sea;
Losing my sister so suddenly
Pulled the rug from under me,
Just as I thought the year was done
My sister left us far too young,
Followed by my Aunty Glo
Which only added to our woe.

Having friends and family
Spending time with me,
Navigating uncharted waters
With these soul-restorers
And learning to swim
In the depths I found myself in.

Celebrating my son’s Master’s Degree
In mollecular-biology,
Filled with joy for my
Curly-headed, blue-eyed boy,
Then employment by the university,
I thank God you didn’t join the army!
Celebrating my daughter’s career move
Getting into the Teacher groove –
The perfect job for my songbird,
Tune them up and make them heard –
Let your baton twirl and spin
Teaching school-children to sing!

Celebratory decision to retire early
Before the job consumed me wholly,
Finding my chiahuahua Kit
And absolutely loving it,
Such uncensored love and loyalty
Has filled my life most joyously.

This year has been bitter-sweet,
Hoping the next will bring a treat.

(c) wordz2Go 31 Dec 2017
Jeremiah 29:11
“I know the plans I have for you, plans to prosper you and not to harm you.”

Hands Through the Clouds

Life knits an ever evolving pattern
Where you can never be sure
How things turn out,
And no doubt
You’ll lose stitches along the way,
Crooked seams where cracks appeared,
Patches wet from tears,
Emotional times in difficult years,
Double stitches
Where you’ve been helped
By family or friends
Because love amends.

No matter how well you knit
There will always be holes
Where your soul never mends,
Yet heaven extends
Hands through the clouds,
Divine signs,
To warn in advance
Of a change in chance.
Strands of different colours
Intertwine seamlessly,
Knitting the rich tapestry
Of life’s majesty.

(c) wordz2Go Dec 2017
Based on a vision I had of hand reaching down from heaven
Just before my sister died suddenly